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I am a mom of 2 boys, one typical and one with PDD-NOS.
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Wednesday, March 19, 2014

a visit to the specialist

A few Mondays ago, SJ finally made it to see his Neurodevelopmental and Developmental Behavioral Specialist.  (We had gone two weeks earlier, but I was there on the wrong day.) I was looking forward to this appointment.  I was anxious to see how he was doing since we were watching the gluten/casein much closer.

Mostly, he seemed pleased with our progress. However, he said he thought SJ may be cheating and sneaking some gluten or casein foods.  

Previously, his gluten level had been a 53.  He was down to a 28.  I was thrilled with that number, but the specialist said he should be below a 10.  I don't know what else we can eliminate, but I must be missing gluten somewhere.  

His casein level was much better.  He had been a 29 and SJ was now around 12.  The only time he is getting dairy is when he eats school pizza or grilled cheese from Chili's.  

He acknowledged that we were doing a good job, but he urged us to just try a little harder.  He even kindly gave me a gluten free/casein free cookbook.

He went over SJ's grades and how he was doing socially in school.  He seemed pleased with both of those two aspects.  We said goodbye to him and scheduled our next appointment for December.  Hopefully, his gluten and casein numbers will be even lower next time.

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